LIVING THE BURDEN: THE LIVED EXPERIENCE OF CAREGIVING BURDEN AMONG PARENTS OF CHILDREN WITH CEREBRAL PALSY
- PhD Candidate, King Saud University, Riyadh, Saudi Arabia.
- Community Nursing and Health Care Department, UQU, Makkah, Saudi Arabia.
- Professor, College of Nursing, King Saud University, Riyadh, Saudi Arabia.
- Abstract
- Keywords
- Cite This Article as
- Corresponding Author
Background: Cerebral palsy (CP) affects not only the child but also the entire family. Raising a child with CP creates numerous challenges for the entire family.
Aim: To explore the lived experience of the burden on parents caring for children with cerebral palsy.
Methods: This qualitative study was conducted in March 2025 using a descriptive phenomenological approach to elucidate the phenomenon through parents experiences. A purposive sample of caregivers of children diagnosed with CP was used.
Results: One core theme, Never give up, emerged. Five main themes were identified: the physical burden of parents, the emotional burden of parents, challenges facing parents, the childs needs, and treatment. Conclusion: The studys findings indicate that family caregivers face significant burdens when raising children with CP, including increased financial, mental, and physical difficulties.
[Norah Garallah Alkhaledi and Abdualrahman S. Ashehry (2025); LIVING THE BURDEN: THE LIVED EXPERIENCE OF CAREGIVING BURDEN AMONG PARENTS OF CHILDREN WITH CEREBRAL PALSY Int. J. of Adv. Res. (Oct). 226-233] (ISSN 2320-5407). www.journalijar.com
1 PhD Candidate, King Saud University 2 Community Nursing and Health Care Department, UQU, Makkah, Saudi Arabia
Saudi Arabia
