20May 2019


  • MPT (Neuro), Ph.D. Scholar,Senior Lecturer, Satish Goswami College of Physiotherapy, Ahmedabad.
  • MPT (Ortho), Senior Lecturer, Pioneer Physiotherapy College, Vadodara.
  • MS(Ortho), Superintendent, Civil Hospital, Ahmedabad.
Crossref Cited-by Linking logo
  • Abstract
  • Keywords
  • References
  • Cite This Article as
  • Corresponding Author

Background and Objective: Caring for a child with a disability presents a multifaceted challenge for managing and coping with the child?s functional limitations and possible long term dependence to the caregiver and family. A wide range of difficulties are experienced by the parents of children with CP. Methods: The study utilized an interview format to examine the difficulties experienced by mothers of children with cerebral palsy. Interviews were conducted in the Gujarat region of India between June 2016 and December 2016, from various physiotherapy and rehabilitation centres with the mothers of 21 children with cerebral palsy. Face to face interviews were held in a suitable physical environment using a semi-structured questionnaire without the use of a recorder. Results: The parents are found to be troubled with many difficulties including problems with personal relations, social and economic problems, issues involving the sick child?s care and education, worries about future of the child, need for more support services etc. Conclusion: In the light of these findings, we recommend that physiotherapy and rehabilitation centres catering to the children with cerebral palsy should focus to provide a professional approach to reviewing the difficulties parents face and emphasize the importance of family?s role in rehabilitation.

  1. Ataman A. Reasons for Being in Need of Special Education. Daytime Education Publishing, Ankara. 2003.
  2. Ozguven IE. Marriage and Family Therapy. PDREM Publications, Ankara. 2000.
  3. Akkok F. Families with Children with Different Feature and Family Studies. Gunduz Education, Ankara. 2003.
  4. Davis E, Waters E. Children with cerebral palsy, psychometric analysis and quality of life. In: Preddy VR, Watson RR (editor) Handbook of Disease Burdens and Quality of Life Measures. Springer, New York. 2010: pp. 3657?3670.
  5. Ramanandi VH, Rao B. Comparison of Stress Levels in The Parents of Children with Cerebral Palsy and Parents of Normal Children in Vadodara Region of Gujarat. Int J Physiother. 2015; 2(2): 421-428.
  6. Davis E, Shelly A, Waters E, Boyd R, Cook K, Davern M. The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers.?Child: care, health and development. 2010;?36(1): 63-73.
  7. Brehaut JC, Kohen DE, Raina P, Walter SD, Russell DJ, Swinton M. et al. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics. 2004;?114(2): e182-e191.
  8. Hutton JL, Pharoah POD. Life expectancy in severe cerebral palsy. Arch Dis Child. 2006; 91(3): 254?258.
  9. Raina P, O\'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115(6):e626-e36.
  10. Majnemer A, Shevell M, Law M, Poulin C, Rosenbaum P. Indicators of distress in families of children with cerebral palsy. Disabil Rehabil. 2012;34(14):1202-7.
  11. Diwan S, Chovatiya H, Diwan J. Depression and quality of life in mothers of children with cerebral palsy. NJIRM. 2011; 35: 81-90.
  12. Nimbalkar S, Raithatha S, Shah R, Panchal DA. A qualitative study of psychosocial problems among parents of children with cerebral palsy attending two tertiary care hospitals in western India.?ISRN family medicine . 2014, Article ID 769619, 6 pages.
  13. Ramanandi VH, Jayswal MD, Panchal DN. A qualitative study to conceptualize levels of awareness, acceptance and expectations in parents of children with cerebral palsy in Gujarat, India. Int J Contemp Pediatr. 2018; 5: 442-447.
  14. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness.?Nurse education today. 2004;?24(2): 105-112.
  15. Burnard P. A method of analysing interview transcripts in qualitative research.?Nurse education today. 1991; 11(6): 461-466.
  16. Pelchat D, Lefebrune H, Perault M. Differences and similarities between mother and fathers? experiences of parenting a child with disability. J Child Care. 2003;7(4): 231?247.
  17. Ferguson PM. A place in the family: an historical interpretation of reactions to having a child with a J Special Educ.2002; 36: 124?136.
  18. Baird G, McConachie H,Scrutton D.Parents\' perceptions of disclosure of the diagnosis of cerebral palsy.Arch Dis Child. 2000; 83: 475-480.
  19. Hall HR, Neely-Barnes SL, Graff JC, Krcek TE, Roberts RJ, Hankins JS. Parental stress in families of children with a genetic disorder/disability and the resiliency model of family stress, adjustment, and adaptation.?Issues in comprehensive pediatric nursing. 2012; 35(1): 24-44.
  20. Girli, A., Yurdakul, A., Sarısoy, M., Ozekes, M.: Group counseling for parents of autistic children withmental disabilities and depression, self-esteem and its effect on attitudes. Saray Rehabil. 6, 2?9 (2000)
  21. Yavuz B, Cimen S. Investigation of the fulfilment levels of the self-care skills of the children with cerebral palsy and affectional factors. Cumhuriyet Journal of Nursing. 2007; 11(1):17?26.
  22. Gray DV. High functioning autistic children and the construction of ??normal family life??. Soc Sci Med. 1997; 44(8): 1097?1106.
  23. Cakır Y, Palabıyıkoglu R. Reliability and validity study of multidimensional scale of perceived social support. J Crisis. 1997; 5(1): 15?24.
  24. Coskun Y, Akkas G. Trait anxiety levels of mothers with disabled children with the relationship between social support perceptions. J Educ Ahi Ervan Univ. 2009; 10(1): 213?227.
  25. Sencar B. Research of Interrelationships Between Social Support and Stress Level that the Families of Autistic Child Perceived. Master thesis, Dokuz Eylul University, Institute of Education Sciences, Izmir. 2007.
  26. Mendenhall A, Mount K. Parents of children with mental illness: Exploring the caregiver experience and caregiver-focused interventions. Families in society: The Journal of Contemporary Social Services. 2011; 92(2):183-90.
  27. Heaman DJ. Perceived stressors and coping strategies of parents who have children with developmental disabilities: a comparison of mothers with fathers.?Journal of pediatric nursing. 1995;?10(5): 311-320.
  28. McConkey R, Kennedy MT, Chang MY, Jarrah S, Shukri R. The impact on mothers of bringing up a child with intellectual disabilities: a cross-cultural study. Int J Nurs Stud. 2008; 45: 65?74.

[Vivek H. Ramanandi (PT), Dhara Panchal (PT) and M. M. Prabhakar (MS). (2019); EXPERIENCES SHARING THROUGH THE INTERVIEWS FROM TWENTY ONE PARENTS OF CHILDREN WITH CEREBRAL PALSY IN GUJARAT REGION OF INDIA. Int. J. of Adv. Res. 7 (5). 591-598] (ISSN 2320-5407). www.journalijar.com

1. Dr. Vivek H. Ramanandi
Satish Goswami College of Physiotherapy, Ahmedabad.


Article DOI: 10.21474/IJAR01/9077       DOI URL: http://dx.doi.org/10.21474/IJAR01/9077

Share this article