Vol. 13 (10) pp. 226-233 DOI: 10.21474/IJAR01/21908

LIVING THE BURDEN: THE LIVED EXPERIENCE OF CAREGIVING BURDEN AMONG PARENTS OF CHILDREN WITH CEREBRAL PALSY

and
  • PhD Candidate, King Saud University, Riyadh, Saudi Arabia.
  • Community Nursing and Health Care Department, UQU, Makkah, Saudi Arabia.
  • Professor, College of Nursing, King Saud University, Riyadh, Saudi Arabia.
12 Downloads 76 Views
Crossref

Download Full Paper (PDF)

Abstract

Background: Cerebral palsy (CP) affects not only the child but also the entire family. Raising a child with CP creates numerous challenges for the entire family.

Aim: To explore the lived experience of the burden on parents caring for children with cerebral palsy.

Methods: This qualitative study was conducted in March 2025 using a descriptive phenomenological approach to elucidate the phenomenon through parents experiences. A purposive sample of caregivers of children diagnosed with CP was used.

Results: One core theme, Never give up, emerged. Five main themes were identified: the physical burden of parents, the emotional burden of parents, challenges facing parents, the childs needs, and treatment. Conclusion: The studys findings indicate that family caregivers face significant burdens when raising children with CP, including increased financial, mental, and physical difficulties.

Keywords

Article Analytics

How to Cite This Article

Norah Garallah Alkhaledi and Abdualrahman S. Ashehry (2025); LIVING THE BURDEN: THE LIVED EXPERIENCE OF CAREGIVING BURDEN AMONG PARENTS OF CHILDREN WITH CEREBRAL PALSY, Int. J. of Adv. Res., 13 (10), 226-233, ISSN 2320-5407. DOI: https://doi.org/10.21474/IJAR01/21908

Corresponding Author

Norah G. Alkhaledi
1 PhD Candidate, King Saud University 2 Community Nursing and Health Care Department, UQU, Makkah, Saudi Arabia
Saudi Arabia
Creative Commons Attribution 4.0 This work is licensed under a Creative Commons Attribution 4.0 International License.